Getting to Know Our Social Health Network Members

Allan I. Fleming

The new Social Health Community (SHN) supplies area to connect with other affected individual leaders. In August, we posted numerous prompts to the Social Health and fitness Community Fb webpage to act as springboards for knowledge one particular yet another and forming connections. Local community members experienced quite a few insights to share!

How summer season heat impacts them

Just one of the thoughts we questioned was about surviving the summer months warmth: “We’re having never-ending summer time below on the east coast of the United States. Does heat impact your wellbeing issue?” Overwhelmingly, the response was “yes!”

“Yes, incredibly much, specifically for my Lupus. Far too incredibly hot can induce a flare, so I have to remain neat.”

“Yes!!! My mast mobile disease doesn’t allow for good temp control. The heat improves my persistent dehydration and influences the wear time of my ostomy bag.”

“Heat only affects CLL (persistent lymphocytic leukemia) patients if they are by now going through ‘night sweats,’ which some have. Add on top of that warm flashes that some of us also have – and it’s like acquiring a microwave on the inside of!”

“I in fact do better in warmer weather conditions. The humidity is what can make items hard for me.”

Their wellbeing journey in 3 words and phrases

A further August prompt requested about neighborhood members’ health journeys: “If you could describe your health journey in 3 text, what would they be?” Quite a few words came up regularly.


Lots of respondents chose “empowering” as a single of their words and phrases. They have uncovered strength in their health journey. Sharing and main from sickness gives them a voice and a new purpose.

“Unusual – disabling – empowering!”

“Realizations, hope, empowerment.”

“Empowering, standpoint, motivating.”

“Thriving, Empowerment, Hope.”

“Devastated, Prayer, Empowered.”


An additional phrase a several folks talked about was “humbling.” Residing with chronic ailment strips away items that most people today get for granted. Health and fitness, easy motion, and doing every day jobs may well be challenging. But these issues guide to classes that people in no way envisioned.

“Unexpected, humbling, strengthening.”

“Definitely humbling.”

“A instructing second.”


The concept of how hard it is to are living with chronic ailment also arose. People today specially pointed to pain, anxiety, and uncertainty.

“Confusing, distressing, mysterious.”

In the major, Tedious, can be DEPRESSING, at times Scary.”

“Learning, living, uncertainty.”

Their Connexion 2022 activities

August was also the month of the annual Connexion assembly. This is a time to get, study from one particular yet another, and hear from Health Union management. 1 Fb prompt requested about ordeals at Connexion: “Thank you so significantly for attending day 2 of Connexion!! What has been your most loved session so far? Have you uncovered anything new?”


Quite a few responses shared an appreciation for networking prospects, specifically the opportunity to network with other affected individual leaders who are portion of the SHN!

“I’m actually savoring meeting other individual leaders, but session-clever I cherished studying now about networking.”

“The networking session was wonderful. I just cannot wait around to fulfill some new pals tomorrow when we get to network once more.”

“I especially liked meeting other individual leaders in the networking session.”

Clinical gaslighting

A different popular session was one particular on professional medical gaslighting. Figuring out that other individuals are also dismissed and ignored by doctors felt affirming to a lot of folks.

“So considerably . . . unquestionably today’s gaslighting session.”

“The gaslighting panel was excellent!”

“Today’s medical gaslighting panel. The dialogue blew my mind in a very good way.”

Thank you

We are grateful to those people who engaged with these prompts! Thank you for remaining in this article and for all the function you do!

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